Wednesday, 18 April 2012

Celebration!

Oh yes, it's true I have been healed and the hospital said could I use my crystal ball to sort out everyone else!!

I did have a sneak preview of today's news actually. Yesterday I went to visit another of my thyroid cancer friends in "the prison" and as I was getting there the medical physics mega brain lady had come too to take my friend's Geiger count readings. She asked me if I had had the results of my scan and I said no, I was having my appointment today. I went on to ask if she could give me any clues and she replied "no, you can wait for the surprise tomorrow". So, as she is the most lovely lady and wouldn't want to give anyone false hope, I was pretty sure that the news had to be good. Still I was rather nervous today all the same.


When I finally got to see Ms oncology today after the inevitable wait, she was very bouncy, quite like Tigger, seemed to be very pleased with herself that she was able to sort out everyone's problems when there were no other staff around. Hey, prior to that I was very bold and refused to go into one of the tiny consultation rooms to wait when asked by a nurse. Ms oncology had just passed through the waiting room and said she had an urgent matter to deal with and would be back shortly. Well I have spent far too long waiting in those little pokey, dismal rooms so asked if it was OK to wait in the waiting room. The nurse was rather nervous about that prospect but agreed finally. Note: Jane finds her voice!!!!! As it was, my sister and I would have waited in said pokey dismal room for 20 minutes, so very glad my voice was operational.


Ms oncology started off by asking me how it had all gone whilst I was preparing for my scan with the drug withdrawal - talk about keeping someone in suspense. She then went on to say it was all very surprising that the scan was clear, blah, blah, blah. Why she couldn't have just said - well I guess you would like to know that your scan was clear first is beyond me, but straight talking seems quite limited round the NHS system in general. The most straight talking I have experienced recently was from a GP who I had never met before at my local surgery.


I saw him to get some blood tests which will be used as a cancer marker baseline for my future blood tests which I will have for the rest of my life. Thyroid tissue can regrow at anytime annoyingly, so in reality one never gets the all clear from this cancer actually (but we can ignore that fact, positive thinking is much more productive I find!). The GP was not a happy bunny to be asked if I could have these blood tests. He carefully explained to me that it was not legally acceptable for him to request a test which he could not interpret. I pointed out that I didn't need him to do that bit, the hospital would, but he was still very uneasy. I had asked the hospital for these tests but Ms oncology was on holiday and my cancer nurse had not been able to get a response from her to check if that was OK. As it happened, after I got home having had the blood tests at my GP surgery, my cancer nurse called me to say that she had had a response from Ms oncology and if I wanted the blood tests I could get them - so there we are. But very interesting to hear the legal implications. I can see now why, when I told the man (the original consultant that I saw who told me I didn't have cancer!) that I had asked my GP for my biopsy results, he got rather cross. As the man had done the biopsy procedure it was his responsibility to tell me the results and I guess legally the GP should not have done so. Anyway, I am very grateful for prior knowledge. The hospital take weeks to see people after they have had tests and procedures and it just makes the majority of us very anxious.


I think I have got verbal diarrhoea, must be the excitement/exhilaration. I can be "normal" again! Ms oncology is a funny chicken you know. Even when I said, wow I haven't got cancer any more she said no and you haven't got a thyroid any more - like that matters in the grand scheme of things.


So I now have some new drugs - plain old thyroxine which I only have to take once a day, hooray.


Ah, another amazing result. My beauty who sprained her knee whilst skiing last week when we were on holiday has been weight bearing this evening. She fell on the last run home on Saturday and ended up in the medical centre being fitted with a full leg brace and crutches. We will need to make sure that she doesn't over do it, but having to sit and watch her friends do PE today made her very sad.


Right, I am exhausted, going to get a redbush tea and get an early night.


Thank you all so much xx 

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